Tag: Ehlers danlos syndrome

According to nutritional science, merely ingesting collagen supplements does not mend or substitute the structurally defective collagen found in individuals with Ehlers-Danlos Syndrome (EDS). This is a common misconception, as the root cause of EDS is not a lack of collagen but a genetic anomaly affecting its production and function.

Recent research suggests that a folate deficiency could contribute to hypermobility syndrome in a subset of individuals due to its impact on connective tissue integrity. Understanding what vitamins to take for hypermobility is crucial for managing symptoms like fatigue, pain, and joint instability and helping to address potential underlying deficiencies.

High plasma levels of hydroxylysine are a significant indicator of accelerated connective tissue breakdown. Understanding what causes high hydroxylysine is crucial for diagnosing and managing a variety of underlying medical conditions, from metabolic disorders to inflammatory diseases that affect collagen.

Hydroxylysine is a key post-translational modification of the amino acid lysine, a process critical for creating robust collagen structures. Its presence, though making up only a small fraction of the protein's content, is central to why hydroxylysine is important in collagen, fundamentally dictating the protein's strength and mechanical stability.

For some patients with Ehlers-Danlos Syndrome (EDS), especially the 40% who experience orthostatic intolerance, maintaining proper hydration is a constant struggle. This often leads to the question, "Do people with EDS need more electrolytes?", a topic intricately linked to managing blood volume and related symptoms.

Approximately 1 in 5,000 individuals are affected by Ehlers-Danlos syndrome (EDS), a group of genetic connective tissue disorders. A common misunderstanding persists regarding whether collagen supplements can help, despite the condition stemming from improper collagen production due to genetic anomalies rather than a simple deficiency.

According to anecdotal reports and clinical observations, many individuals with Ehlers-Danlos syndrome (EDS) find that certain foods can significantly exacerbate their symptoms. Identifying what foods make EDS worse can be a powerful step in managing conditions often associated with the disorder, such as Mast Cell Activation Syndrome (MCAS) and gastrointestinal issues. This guide explores common dietary triggers and offers strategies for a personalized approach to nutrition.

Dr. Leigh O'Brien, a New Zealand registered dietitian, completed her PhD in Human Nutrition in 2023, following a distinguished career focused on clinical dietetics and food safety consultancy. This comprehensive article details who Leigh O Brien dietitian is by exploring her diverse professional path, specialized areas of practice, and significant research contributions.

According to research, many individuals with Ehlers-Danlos Syndrome (EDS) and hypermobility often face challenges with nutrient absorption, making deficiencies in essential vitamins and minerals common. Navigating what supplements should people with Ehlers Danlos take can be complex, as needs vary based on individual symptoms and potential co-occurring conditions.

Over 90% of the collagen in the human body consists of just a few types, primarily type I, II, and III. However, the lesser-known type 5 collagen plays a unique and crucial regulatory role in the assembly of these more abundant fibrils, proving that its existence and function are vital.