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What is Voluntary Starvation (VSED) and Its Role in End-of-Life Care?

5 min read

Recent research in Switzerland estimated that voluntary stopping eating and drinking (VSED), a form of voluntary starvation, accounted for 1.7% of deaths in nursing homes, highlighting its growing presence in end-of-life planning. This deliberate act is a complex end-of-life option chosen by a competent adult seeking to control the timing and manner of their death due to unbearable suffering from a terminal or incurable illness.

Quick Summary

Voluntary starvation, known as VSED, is a conscious decision by a mentally capable adult to refuse all food and fluids to hasten death, typically due to intolerable suffering from a progressive illness. The process is distinct from natural end-of-life decline and requires careful planning and support.

Key Points

  • Definition of VSED: Voluntary starvation, medically known as VSED, is a deliberate, intentional, and persistent refusal of all food and fluids by a mentally competent individual to hasten death.

  • Distinction from other forms: VSED is different from starvation due to eating disorders or the natural decline in appetite experienced by many terminally ill individuals nearing death.

  • Process and duration: The process of VSED typically lasts one to three weeks and involves stages of increasing weakness, lethargy, and eventual unconsciousness as the body dehydrates.

  • Symptom management: Thirst is a common symptom in the early stages and is managed with meticulous oral care, humidifiers, and comfort medications; severe hunger is typically uncommon.

  • Requires support: VSED is not a process undertaken alone and requires the full support and assistance of family, caregivers, and hospice professionals for the patient's comfort and safety.

  • Legal and ethical debate: While a competent person has the legal right to refuse treatment, including food and fluid, VSED raises ethical debates about whether it constitutes suicide and the moral obligations of healthcare providers.

In This Article

Defining Voluntary Starvation: VSED Explained

Voluntary starvation is most commonly known in medical and ethical discussions as Voluntarily Stopping Eating and Drinking (VSED). It is the conscious, intentional, and persistent refusal of all food and fluids by a mentally competent individual with the clear objective of hastening death. Unlike the loss of appetite that naturally occurs in many terminally ill individuals, VSED is a deliberate act of will. This choice is typically motivated by a desire to gain control over the dying process and avoid a prolonged period of dependence or suffering from an incurable and progressive disease.

It is critical to distinguish VSED from other forms of food refusal. For example, a person with an eating disorder like anorexia nervosa is not undertaking voluntary starvation in the context of VSED. Starvation syndrome from an eating disorder involves complex psychological factors and a distorted body image, not a rational end-of-life decision. Similarly, the reduced appetite and diminished eating that occurs naturally as a person nears death is not VSED; it is a physiological response, not a voluntary decision to hasten death. An individual pursuing VSED must be of sound mind at the time of the decision, though they may later become delirious or comatose during the process.

The Process and Physiological Effects of VSED

The VSED process is a progressive, multi-stage experience that typically lasts one to three weeks. It requires immense resolve and the support of a dedicated care team, which can include family, friends, and hospice professionals.

The timeline and physical effects of VSED can be broken down into several stages:

  • Initial Stage (First Few Days): Thirst is often the most challenging symptom during this period, while hunger pangs are typically less severe and fade quickly as the body transitions to ketosis. The individual remains alert and engaged, but thirst management is crucial for comfort.
  • Middle Stage (1-2 Weeks): As dehydration progresses, weakness increases, and kidney function begins to fail. The person becomes sleepier, more lethargic, and may experience periods of delirium. This is when 24/7 care becomes essential for safety and comfort.
  • Late Stage (Final Days): The individual will likely become unresponsive or enter a coma. The body's organ systems begin to shut down, leading to a natural and peaceful death. Death is primarily from dehydration, not starvation, and is often caused by cardiac arrest.

To manage symptoms and ensure comfort, a patient undertaking VSED will require palliative care. Essential comfort measures often include:

  • Excellent oral care, such as using mouth swabs, rinses, or artificial saliva to manage dry mouth.
  • Using a humidifier to moisten the air.
  • Applying moisturizing lotion to combat dry skin.
  • Medications for pain, anxiety, and agitation, including morphine, lorazepam, and haloperidol.
  • Consistent repositioning and padding to prevent discomfort.

Legal and Ethical Considerations

The legality and ethical status of VSED are widely discussed and complex. In many countries, including the United States, a competent adult's right to refuse medical treatment—including artificial nutrition and hydration—is affirmed by courts, and this right is often interpreted to include the refusal of oral food and fluids. While VSED is generally not illegal, it falls into a legal gray area, unlike physician-assisted death (PAD), which has specific regulations.

Ethically, VSED raises questions about whether it constitutes suicide. Some ethicists argue it is a form of suicide because the patient has the clear intention to end their life sooner. However, many others contend it is distinct because the patient is refusing treatment and allowing an underlying illness to run its course, rather than introducing a lethal substance. Most importantly, the process is self-directed and requires a sustained will, rather than a physician providing the means of death. Some medical professionals may harbor moral objections, requiring patients and their families to seek out supportive care providers and hospices in advance. For comprehensive information on navigating these conversations, resources from organizations like Compassion & Choices are invaluable: https://compassionandchoices.org/vsed/.

VSED vs. Physician-Assisted Dying

Feature Voluntary Starvation (VSED) Physician-Assisted Dying (PAD)
Competency Requirement Patient must be mentally capable of making the decision at the start of the process. Patient must be mentally competent to make the request and self-administer the medication.
Medical Diagnosis Does not always require a terminal prognosis; chosen for incurable, progressive, or intolerable suffering. Typically requires a prognosis of six months or less to live.
Mechanism of Death Patient's body naturally dehydrates and shuts down; no lethal substances are involved. Patient self-administers a lethal dose of medication prescribed by a physician.
Physician Role Provides palliative care and comfort measures; not directly causing or assisting the death. Prescribes lethal medication for the patient to ingest.
Process Duration Typically takes 1 to 3 weeks, depending on the patient's health and strictness of fluid refusal. Death usually occurs quickly after ingesting the medication, often within hours.
Legal Status Considered a legal right to refuse medical treatment; few explicit laws govern it. Legal in specific jurisdictions and heavily regulated by law.

Planning and Support for VSED

Preparation for VSED is crucial and involves both legal and practical steps to ensure the patient's comfort and wishes are honored.

Preparing for the process involves:

  1. Completing advance directives: Documenting your intentions in a healthcare directive or living will is essential. Some states have specific VSED directives.
  2. Securing a supportive care team: VSED requires 24-hour care in later stages, so involving a hospice, caregivers, and family members is necessary.
  3. Open communication: Discussing the decision with family and medical providers is vital to building a supportive environment and ensuring wishes are understood and respected.
  4. Gathering comfort supplies: Having a humidifier, mouth swabs, and other palliative care items on hand can alleviate some of the common symptoms.
  5. Medication review: Consulting with a physician or hospice nurse to discontinue unnecessary medications and secure prescriptions for comfort measures is important.

Conclusion

Voluntary starvation, or VSED, represents a profound and serious end-of-life option for a mentally competent individual facing intractable suffering from a progressive or terminal illness. Distinct from both the natural process of dying and legally regulated forms of assisted death, VSED is a patient-controlled act of refusing nourishment. It requires careful planning, a strong support network, and access to quality palliative care to manage symptoms and ensure a peaceful death. While raising complex legal and ethical questions, VSED remains a legal and often preferred option for those who wish to maintain autonomy over the final chapter of their life.

Frequently Asked Questions

While the experience varies, VSED is not usually considered excruciatingly painful, especially with good palliative care. Initial discomfort from thirst is common but manageable with good oral care. As dehydration progresses, consciousness decreases, and a patient will often become unresponsive before death.

The time frame for VSED can vary based on the individual's underlying health and constitution, but it typically takes between one and three weeks. For terminally ill patients, the average is often closer to ten days.

No. Unlike some Death with Dignity laws, VSED does not require a specific terminal diagnosis with a prognosis of six months or less. A person may choose it due to an incurable, progressive illness or other intolerable suffering.

Legally and ethically, VSED is often distinguished from suicide. It is considered a refusal of treatment and allowing an underlying condition to take its course, not the introduction of a lethal agent to cause death. A death certificate will typically list the underlying medical condition as the cause of death.

Hospice provides essential palliative care to manage symptoms and ensure the patient is comfortable throughout the process. However, not all hospices may be comfortable or equipped to support VSED, so it is important to discuss this option with potential providers beforehand.

Yes. In the early stages, a person can change their mind and resume eating and drinking. If they later become delirious and ask for food or water, caregivers should be prepared to remind them of their earlier, competent decision while still respecting their current wishes if they persist.

Caregivers provide constant support, managing symptoms like dry mouth and anxiety with comfort measures and medication. They also offer emotional and physical presence, helping to keep the patient safe and comfortable as their strength declines.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice.