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What Foods Should I Avoid With Dysautonomia?

4 min read

According to Dysautonomia International, millions of people worldwide are affected by dysautonomia, a condition where the autonomic nervous system malfunctions, impacting functions like heart rate and digestion. A personalized diet, focused on avoiding trigger foods, is a key strategy for managing symptoms and improving daily life.

Quick Summary

Dysautonomia patients often benefit from avoiding specific dietary triggers that can worsen symptoms. Common culprits include large meals, refined sugars, and alcohol, which can cause blood pressure fluctuations and dehydration. Some individuals may also need to avoid caffeine, gluten, or high-histamine foods based on personal sensitivity. Adapting your diet is an important step toward better symptom management.

Key Points

  • Avoid Alcohol: Alcohol's dehydrating and vasodilating effects can significantly worsen dysautonomia symptoms like low blood pressure and tachycardia.

  • Eat Smaller Meals: Large meals can divert blood flow to the digestive system, causing fatigue and dizziness, so opt for smaller, more frequent meals instead.

  • Limit Refined Sugars: High-sugar foods and simple carbs can lead to blood sugar spikes and crashes, which may trigger increased heart rate and shakiness.

  • Monitor Caffeine Intake: Caffeine affects dysautonomia patients differently; some find it helps, while others experience worsened heart palpitations or anxiety.

  • Address Food Sensitivities: For some, sensitivities to gluten, dairy, or high-histamine foods can cause inflammation and digestive issues that exacerbate dysautonomia symptoms.

  • Stay Hydrated: Maintaining adequate fluid intake is critical, often aided by electrolytes and an increased sodium intake, as recommended by a doctor.

In This Article

Common Dietary Triggers for Dysautonomia

For people living with dysautonomia, the foods and drinks consumed can have a significant impact on symptoms like dizziness, fatigue, and rapid heart rate. Certain substances can exacerbate the malfunction of the autonomic nervous system, while others can cause digestive distress that further complicates matters. Learning to identify and avoid these specific triggers is a critical step in managing the condition effectively.

Alcohol

Alcohol is a primary trigger to avoid or limit for most people with dysautonomia. It is both a vasodilator and a diuretic, which means it widens blood vessels and promotes fluid loss. This combination can lead to a drop in blood pressure and dehydration, both of which can significantly worsen symptoms like lightheadedness and a racing heart. For those with co-occurring conditions like Mast Cell Activation Syndrome (MCAS), alcohol can also trigger symptoms due to its high histamine content.

Large or Heavy Meals

Many dysautonomia patients find that their symptoms worsen after eating a large meal. This is because the body directs a significant amount of blood flow to the gut to aid in digestion. For those with compromised autonomic function, this can lead to a temporary drop in blood pressure and cause symptoms such as dizziness and fatigue. Eating smaller, more frequent meals throughout the day can help mitigate this effect by preventing large shifts in blood volume. Additionally, meals high in fat or complex carbohydrates can take longer to digest, potentially prolonging discomfort.

Refined Sugars and Simple Carbohydrates

Foods high in refined sugar and simple carbohydrates, such as white bread, pasta, and sugary drinks, should be consumed with caution. These foods can cause a rapid spike and subsequent crash in blood sugar levels, which can lead to increased heart rate, shakiness, and fatigue in individuals with dysautonomia. Studies have shown that glucose intake can specifically worsen standing tachycardia in patients with Postural Orthostatic Tachycardia Syndrome (POTS), a common form of dysautonomia. Opting for complex carbohydrates and pairing them with protein and healthy fats can help stabilize blood sugar.

Caffeine

The impact of caffeine on dysautonomia varies significantly among individuals. For some, a small amount may provide a boost, while for others, it can drastically worsen symptoms. Caffeine is a stimulant that can increase heart rate and blood pressure, potentially leading to palpitations, shakiness, and anxiety. Those with hyperadrenergic POTS, where there are excessive levels of norepinephrine, may be particularly sensitive. It is important to carefully monitor your own reaction to caffeine and adjust intake accordingly, perhaps replacing it with hydrating herbal teas.

Gluten, Dairy, and High-Histamine Foods

While not universal triggers, some individuals with dysautonomia, especially those with co-occurring conditions, may experience sensitivities to gluten and dairy. These sensitivities can cause gastrointestinal distress, bloating, and inflammation that can worsen overall dysautonomia symptoms. Similarly, a low-histamine diet may be beneficial for patients with Mast Cell Activation Syndrome (MCAS), a condition often seen with dysautonomia. High-histamine foods include aged cheeses, fermented products, and certain fish. A food diary can be a helpful tool for tracking potential sensitivities and discussing them with a healthcare provider.

Comparison of Dysautonomia Diet Considerations

Dietary Factor Potential Impact on Symptoms Dysautonomia-Friendly Alternative
Alcohol Dehydration, vasodilation, increased heart rate, low blood pressure Water, electrolyte drinks, herbal tea, sparkling water with fruit
Large Meals Shifts blood volume to digestion, causes fatigue and dizziness Smaller, more frequent meals spaced throughout the day
Refined Sugars Blood sugar spikes and crashes, increased heart rate, fatigue Complex carbohydrates like whole grains, lean protein, healthy fats
Caffeine Can cause increased heart rate, shakiness, and anxiety in some Decaffeinated beverages, herbal teas, or small, monitored amounts for those who tolerate it
Highly Processed Foods Lack of nutrients, high in sodium, additives, and unhealthy fats Whole, unprocessed foods; check labels for hidden additives
Gluten/Dairy (for some) Gastrointestinal distress, bloating, inflammation Gluten-free grains, alternative dairy products, plant-based milks

Creating a Dysautonomia-Friendly Diet

Managing diet with dysautonomia is highly personal. What works for one person may not work for another, so the key is to pay close attention to your body's reactions. Keeping a food and symptom journal can help identify personal triggers and patterns. It is also beneficial to focus on foods that support hydration and electrolyte balance, which are often crucial for managing symptoms.

Consuming plenty of fluids is essential, especially for those with conditions like POTS that involve low blood volume. Incorporating salty snacks like pickles, salted nuts, and broths can help some patients increase their sodium intake as recommended by their healthcare provider. However, it is vital to consult a doctor before making significant dietary changes, especially regarding salt intake.

Working with a registered dietitian who understands dysautonomia can provide personalized dietary recommendations and ensure adequate nutrition. By being mindful of your body's signals and making informed choices, you can better manage your symptoms and improve your overall well-being. A diet rich in nutrient-dense whole foods, smaller meals, and adequate hydration is a strong foundation for supporting autonomic health. For more information on managing POTS, a specific type of dysautonomia, resources from Standing Up to POTS can be helpful, especially regarding nutritional strategies.

Conclusion

While there is no one-size-fits-all diet for dysautonomia, knowing which foods and habits to avoid is crucial for symptom management. Limiting or eliminating alcohol, refined sugars, large meals, and potentially caffeine can make a significant difference for many. Furthermore, identifying personal triggers like gluten, dairy, or high-histamine foods through careful tracking can lead to further symptom relief. By prioritizing a well-hydrated, whole-food-based diet with smaller, more frequent meals, individuals can take proactive steps to support their autonomic nervous system and improve their quality of life. Always remember to consult with a healthcare professional before making any major dietary changes.

Frequently Asked Questions

Eating a large meal requires a significant amount of blood flow to be directed to the digestive system. For those with dysautonomia, this can cause a shift in blood volume, leading to symptoms like dizziness, fatigue, and a drop in blood pressure, especially when standing.

The effect of caffeine is highly individual for dysautonomia patients. While some find it beneficial, others experience worsened heart rate, shakiness, or anxiety. It is important to monitor your personal reaction and discuss your caffeine intake with a doctor.

Alcohol acts as both a diuretic and a vasodilator, causing dehydration and a drop in blood pressure. These effects can significantly worsen dysautonomia symptoms such as dizziness and increased heart rate, which is why limiting or avoiding alcohol is often recommended.

You do not need to avoid all carbohydrates. However, it is often recommended to limit or replace refined carbohydrates and sugars with complex carbohydrates, which cause more stable blood sugar levels. Eating smaller portions of carbs with protein and fat can also be helpful.

Some individuals with dysautonomia report sensitivities to gluten and dairy, leading to worsened gastrointestinal and inflammatory symptoms. It is not a universal trigger, but keeping a food diary to track personal reactions can help determine if an elimination trial is necessary.

Many people with dysautonomia, particularly those with POTS, have low blood volume. Staying well-hydrated, often with added sodium and electrolytes as advised by a doctor, helps increase blood volume and stabilize blood pressure, reducing symptoms like dizziness and fatigue.

The most effective way to identify your specific food triggers is by keeping a detailed food and symptom journal. Document what you eat and drink and any corresponding symptoms you experience. Sharing this log with your healthcare provider or a dietitian can help you pinpoint patterns.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice.