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What Should You Not Eat with Celiac Disease?

5 min read

According to the Celiac Disease Foundation, up to 1% of the global population is affected by celiac disease. It is a serious autoimmune condition where ingesting gluten causes damage to the small intestine, making it imperative to know exactly what should you not eat with celiac disease to manage symptoms and promote healing.

Quick Summary

A strict, lifelong gluten-free diet is the only effective treatment for celiac disease, requiring the complete avoidance of gluten-containing grains and foods to prevent intestinal damage. This includes obvious sources like wheat, barley, and rye, along with hidden gluten in processed foods, condiments, and other items through additives or cross-contamination.

Key Points

  • Avoid All Wheat, Barley, and Rye: This includes obvious grains in bread, pasta, and baked goods, along with derivatives like malt and semolina.

  • Watch for Hidden Gluten: Many processed foods, from sauces and salad dressings to deli meats and condiments, contain gluten as an additive or thickener.

  • Prevent Cross-Contamination: Even tiny amounts of gluten can cause intestinal damage, so use separate kitchen equipment, utensils, and cutting boards, and be cautious when dining out.

  • Choose Certified Gluten-Free Products: Oats and other naturally gluten-free grains can be contaminated during processing; always opt for items clearly labeled 'Certified Gluten-Free'.

  • Scrutinize Non-Food Items: Some medications, supplements, and cosmetics can contain gluten as a binder or filler, so check ingredients or consult a pharmacist.

  • Become an Expert Label Reader: Learn to identify all the various names for gluten and its derivatives on ingredient lists to ensure your diet remains completely gluten-free.

In This Article

Grains and Baked Goods to Eliminate

At the core of the gluten-free diet are the grains that contain gluten: wheat, barley, and rye. These are the most common and obvious culprits that must be strictly avoided. The list of specific products and ingredients derived from these grains is extensive, and even small, trace amounts of gluten can trigger an autoimmune response in individuals with celiac disease.

Wheat and Its Many Forms

Wheat is a primary source of gluten and appears in a vast array of common foods. The many varieties and derivatives of wheat also contain gluten and must be avoided. This includes spelt, farina, kamut, einkorn, and semolina. Items to eliminate from your diet include:

  • Baked Goods: Breads, bagels, cakes, cookies, pastries, and muffins made with wheat flour.
  • Pasta and Noodles: Spaghetti, lasagna, ramen, and couscous, unless specifically labeled gluten-free.
  • Cereals: Any cereal containing wheat, wheat bran, or wheat germ.
  • Breading and Coatings: Flour-based coatings on meats, vegetables, or fried foods.

The Dangers of Barley and Rye

Both barley and rye contain gluten and must be excluded entirely from a celiac-safe diet. Be especially aware of barley, as it is often used in common beverages and flavorings. Watch out for:

  • Beer: Most beers, lagers, and ales contain barley.
  • Malt: Malt extract, malt flavoring, and malt vinegar are derived from barley.
  • Rye: Found in many types of bread, crackers, and some distilled liquors.

Navigating the Nuances of Oats

Oats are naturally gluten-free but pose a significant risk due to cross-contamination with wheat, barley, and rye during growing and processing. For this reason, it is crucial for individuals with celiac disease to consume only oats explicitly labeled as "gluten-free" and certified through a purity protocol. Some people with celiac disease may also be sensitive to avenin, a protein in oats, and should consult their healthcare provider before adding even certified gluten-free oats to their diet.

Hidden Gluten: The Sneaky Culprits

Beyond the obvious grains, gluten can be lurking in many processed foods as an additive, thickener, or stabilizer. Reading labels meticulously is a non-negotiable part of managing celiac disease. Some surprising sources include:

  • Sauces and Dressings: Soy sauce, marinades, gravies, and many salad dressings often use gluten as a thickener.
  • Processed Meats: Hot dogs, sausages, cold cuts, and imitation crab meat can contain gluten fillers.
  • Condiments and Spices: Some spice blends, mustards, and ketchup may contain hidden gluten ingredients.
  • Snack Foods: Certain potato chips, flavored rice mixes, and candy can contain gluten-derived additives.
  • Soups and Broths: Canned soups and bouillon cubes often contain gluten.

The Critical Risk of Cross-Contamination

Cross-contamination is one of the most significant and often underestimated risks for people with celiac disease. Even a tiny amount of gluten, invisible to the naked eye, can cause intestinal damage. This can happen in restaurants, shared household kitchens, or during food manufacturing.

Cross-Contamination Comparison Table Area of Contamination High-Risk Examples Mitigation Strategies
Shared Kitchen Using the same toaster for gluten-containing bread, reusing a knife after cutting regular bread in a butter or jam jar, shared flour in the air. Designate separate gluten-free appliances, like a toaster. Use separate, clearly labeled condiments. Clean all surfaces thoroughly before use.
Dining Out Fried food cooked in the same oil as breaded items, gluten-free pasta cooked in shared water, communal buffet spoons mixing dishes. Ask detailed questions about food preparation. Choose dedicated gluten-free restaurants or kitchens. Alert your server to the severity of your celiac disease.
Manufacturing Naturally gluten-free products processed on the same equipment as gluten-containing items, such as bulk bin grains and some packaged foods. Only purchase products with a 'Certified Gluten-Free' label. Avoid bulk bins at grocery stores.

Non-Food Items and Ingredients to Scrutinize

Gluten is not limited to food and can appear in surprising non-food products.

  • Medications and Supplements: Gluten is sometimes used as a binding agent in both over-the-counter and prescription medications, as well as vitamins and supplements. Always consult a pharmacist about ingredients.
  • Cosmetics and Toiletries: Lipsticks, lip balms, and some cosmetics may contain gluten. For those with dermatitis herpetiformis, even external contact can be an issue.

Conclusion

Navigating a gluten-free diet with celiac disease extends far beyond simply avoiding bread and pasta. It requires a diligent approach to reading labels, understanding hidden ingredients, and preventing cross-contamination in all areas of life, from the kitchen to restaurants. A strict, lifelong adherence to a gluten-free lifestyle is the only way to manage symptoms and allow the small intestine to heal. Consulting a dietitian is highly recommended to create a balanced diet and address any nutritional deficiencies. Armed with knowledge about what to avoid, individuals with celiac disease can confidently manage their condition and maintain their long-term health.

Understanding the Gluten-Free Lifestyle

For those newly diagnosed or seeking to better manage their condition, embracing a gluten-free lifestyle is key. Education is paramount, as gluten can be an invisible threat. A comprehensive resource on the dietary changes required can be found at the Johns Hopkins Medicine website.

Creating a Safe Kitchen

To protect yourself from cross-contamination at home, consider dedicating certain items solely to gluten-free preparation. Small appliances like toasters are notoriously difficult to clean of crumbs and are a prime example of where a dedicated gluten-free version is best. For shared utensils, a thorough wash in a dishwasher or hot, soapy water is generally sufficient, but wooden utensils and cutting boards are porous and should ideally be kept separate.

The Importance of Label Reading

Becoming an expert label reader is essential. In the United States, foods labeled "gluten-free" must contain less than 20 parts per million of gluten, a level generally considered safe for most people with celiac disease. However, be wary of products with vague claims like "made with no gluten-containing ingredients," as this does not guarantee against cross-contamination during manufacturing.

Dining Out with Celiac Disease

Eating out can be challenging, but many restaurants are now more accommodating. Calling ahead to ask about their gluten-free protocols is a smart strategy. Be specific about the severity of your allergy, and ask questions about how items are prepared, particularly about fryers and pasta water. Bringing your own safely prepared food to gatherings is also a reliable way to avoid accidental exposure.

Frequently Asked Questions

The most common grains to avoid with celiac disease are wheat, barley, and rye, which contain gluten and are used in countless food products.

You can eat oats only if they are specifically labeled as 'gluten-free,' as regular oats are highly susceptible to cross-contamination with wheat during processing.

Cross-contamination occurs when gluten-free food comes into contact with gluten-containing food, surfaces, or utensils. It is a risk because even trace amounts of gluten can trigger an autoimmune reaction and cause intestinal damage in someone with celiac disease.

Traditional soy sauce is made with wheat and is not gluten-free. However, gluten-free versions are available; always check the label to be sure.

You should exercise caution, as cross-contamination can occur even with dedicated menus. It is recommended to ask detailed questions about their food preparation processes, such as using separate fryers or cooking surfaces.

Some medications, including both prescription and over-the-counter types, can contain gluten as a binding agent. It is important to ask a pharmacist to check the ingredients of all your medications.

Yes, potatoes and rice are naturally gluten-free and are safe to eat, as long as they haven't been prepared with gluten-containing ingredients or subjected to cross-contamination.

References

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Medical Disclaimer

This content is for informational purposes only and should not replace professional medical advice.